Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyEndometrialCancerTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I have Lynch Syndrome and lost my mother to pancreatic cancer 4 weeks after her diagnosis. I had a full robotic hysterectomy and brachetherapy radiation.

September 3
 · 
Be the first to react
Endometrial Cancer Grades 1 to 3: How Fast It Spreads and When It Becomes Metastatic Read Article...
myEndometrialCancerTeam

First, congratulations on 10 years cancer-free β€” that is a truly remarkable milestone, and your treatment history sounds very thorough. So sorry to hear about your mother.

Given your Lynch syndrome, seeing a gynecologic oncologist periodically β€” even alongside your NP β€” is worth considering. Lynch syndrome carries elevated Show Full Answer

First, congratulations on 10 years cancer-free β€” that is a truly remarkable milestone, and your treatment history sounds very thorough. So sorry to hear about your mother.

Given your Lynch syndrome, seeing a gynecologic oncologist periodically β€” even alongside your NP β€” is worth considering. Lynch syndrome carries elevated genetic cancer risks, and a specialist brings a deeper level of expertise in monitoring for any changes. Here's what's worth discussing with your care team:

- Specialist oversight: A board-certified gynecologic oncologist can review your ongoing surveillance plan, especially given your Lynch syndrome history
- Screening frequency: Depending on which Lynch syndrome mutation you carry (MLH1, MSH2, MSH6, or PMS2), screening recommendations differ β€” your doctor can tailor this
- Your NP's role: NPs provide excellent care, but having a specialist periodically review your case adds an important layer of expertise

The good news is that your hysterectomy significantly reduces certain cancer risks associated with Lynch syndrome. However, staying connected to a specialist ensures nothing gets missed.

September 3

Related Questions

View All
A MyEndometrialCancerTeam Member asked a question πŸ’­
San Antonio, TX