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A MyEndometrialCancerTeam Member asked a question 💭
Haverford, PA

Newly diagnosed stage 1, endometrial cancer.

April 15, 2025
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Answer Summary

Members overwhelmingly reassured someone scheduled for robotic hysterectomy for stage 1 endometrial cancer, sharing that the surgery itself... Read more

Members overwhelmingly reassured someone scheduled for robotic hysterectomy for stage 1 endometrial cancer, sharing that the surgery itself was surprisingly tolerable with minimal pain after the first few days and quick healing times, though many emphasized the importance of following post-surgery restrictions like avoiding heavy lifting. Several members described their treatment paths after surgery, including chemotherapy and brachytherapy, with many noting that while brachytherapy setup felt awkward and required using dilators afterward to prevent scarring, the actual treatment was manageable with only mild side effects like fatigue and temporary bowel or bladder changes. A recurring theme was the importance of taking things one step at a time, trusting your medical team to guide you through each phase, and remembering that anxious thoughts are often worse than the actual experience.

A MyEndometrialCancerTeam Member

Louise, they will walk you through every step. I was surprised that radiation only caused manageable side effects. I never required a dilator because I was having sex. Try not to overwhelm yourself. My overwhelming thoughts have been worse than my outcome and I tortured myself ♥️

July 11, 2025
A MyEndometrialCancerTeam Member

I had a hysterectomy May 19 and path report said cancer free. Will know more when I see my surgeon July 3. Thanks for your good wishes.

June 12, 2025
A MyEndometrialCancerTeam Member

I was diagnosed in April 2025 with endometrial cancer, grade 1 after a hysteroscopy with polypectomy, my gynecologist sent me to a gynecological oncologist. I had a full robotic hysterectomy on June 4, where my pathology came back as stage 1b, I will undergo brachytherapy after my July 14 post-op visit. Curious to see if anyone has any comments regarding brachytherapy. I see lots of comments on bladder and bowel changes. Thank you and I send healing vibes to anyone dealing with this!

June 11, 2025
A MyEndometrialCancerTeam Member

Lots of incontinence at first but that's better now. Still have many nights when I have to use the bathroom every 2 hours. More frequent bowel movements and still lots of flatulence (embarrassing!). Look up dilators. They come in many sizes. The one they gave me is a solid piece of plastic that is approximately 6 inches long and 1 inch in diameter. It has to be used at least 2 times a week, at least 10 minutes at a time. I had brachytherapy radiation and it's to prevent scar tissue from forming so the doctors can continue to do vaginal exams.

April 21, 2025
A MyEndometrialCancerTeam Member

I had a total hysterectomy 2 weeks ago using robotic assisted and am feeling good past the first couple of days. I was glad that I spent 2 days in the hospital as they took care of pain and oxygen monitoring. I do not usually have a need for oxygen but I did after surgery. There wasn't much of a need for pain medication and I was able to use extra strength Tylenol every 6 hours.My experience with this type of surgery is good,although I will have to continue with chemotherapy or radiation.

April 15, 2025

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