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A MyEndometrialCancerTeam Member asked a question πŸ’­
Carrollton, GA

After a diagnostic procedure which determined that I had carcinosarcoma I had a complete hysterectomy Nov. 21 2025. All my pathology came back clean, but I was told that because my cancer is 'rare and aggressive', I should have chemo treatments. I have just completed my sixth treatment and in two weeks I will have a PETscan and see the surgeon for a examination. I find little information because of the rarity.

April 28
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A MyEndometrialCancerTeam Member

Thank you for your reply. It gives me hope.

May 1
A MyEndometrialCancerTeam Member

Very true and informative information. Stage 4 metastatic to pelvic lymph nodes. 4 of 6 chemotherapy completed. Cells have extremely shrunk (per Dr) from CT before 4th session. After 6th I we will be doing Immunotherapy. Side effects for me was itchy reaction to Chest port insert. Neuropathy in fingers, legs and feet. Legs and finger neuropathy have gone away. Feet caused by medicine my Dr lowered the dose because my results are great so waiting for that to kick in. Praise God πŸ™

May 1
myEndometrialCancerTeam

Uterine carcinosarcoma is indeed a rare and aggressive form of endometrial cancer. It's unique because it contains two types of cancerous cells, which is part of what makes it behave differently from more common endometrial cancers. You're right that information can be harder to find β€” so it's great that you're asking Show Full Answer

Uterine carcinosarcoma is indeed a rare and aggressive form of endometrial cancer. It's unique because it contains two types of cancerous cells, which is part of what makes it behave differently from more common endometrial cancers. You're right that information can be harder to find β€” so it's great that you're asking questions!

Here's what is generally known about how it's treated:

- Surgery first: A complete hysterectomy (removing the uterus, ovaries, and fallopian tubes) is the standard first step β€” which you've already completed. Clean pathology results after surgery is genuinely encouraging news.
- Chemotherapy after surgery: Because carcinosarcoma is aggressive, chemotherapy is typically recommended even when pathology looks clean. This is called adjuvant therapy β€” it's a precautionary step to reduce the risk of the cancer returning.
- Common chemo regimens: Ifosfamide combined with paclitaxel or cisplatin are frequently used for uterine carcinosarcoma specifically. Completing six chemotherapy treatments is a significant milestone β€” that takes real strength and resilience.

The upcoming PET scan is an important next step. It will help your care team get a clear picture of whether any cancer activity remains anywhere in the body. This kind of imaging is especially valuable with aggressive cancer types, as it can detect things that may not show up in standard pathology.

A few things worth discussing with your surgeon at that upcoming appointment:

- What the PET scan results mean for your specific situation
- Whether any additional treatments (such as radiation) might be recommended
- What your follow-up monitoring schedule will look like going forward
- Any symptoms to watch for that should prompt an earlier check-in

Staying closely connected with your oncology team is especially important with rarer cancer types, as treatment decisions are often highly personalized. Don't hesitate to ask them every question you have β€” no question is too small.

April 28

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A MyEndometrialCancerTeam Member asked a question πŸ’­
Newtown, PA

A MyEndometrialCancerTeam Member asked a question πŸ’­