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A MyEndometrialCancerTeam Member asked a question 💭
Greater Boston

I completed my 4th and final brachytherapy yesterday (Wednesday). At this time there are no plans for chemo. I know I should feel lucky, but at the moment all I feel is exhausted and a bit scared. It's silly, but the idea that I will not see either the radiation oncologist or the surgical oncologist for 3 months has me thinking of all the "what if's" I'm also trying to figure out where do I go from here? All the months while fighting for a diagnosis while I was in almost unbearable pain, I kept… read more

August 6
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Answer Summary

Members responded with deep empathy to the question of coping with uncertainty after completing cancer treatment, validating how disorienting... Read more

Members responded with deep empathy to the question of coping with uncertainty after completing cancer treatment, validating how disorienting it feels when the structure of appointments and doctor visits suddenly ends. Several members shared that staying present, practicing gratitude, leaning on faith or personal belief systems, and trusting their medical teams helped ease the anxiety of the 'what ifs.' A recurring theme was that advocating for yourself with doctors, like requesting additional scans when something feels wrong, and leaning on community support are powerful tools for navigating life after treatment.

A MyEndometrialCancerTeam Member

Set a new goal.

August 22
A MyEndometrialCancerTeam Member

Keep the faith and trust God!

August 19
A MyEndometrialCancerTeam Member

Irene, you sound like the kind of person people are very thankful to have in their lives and you sure are a blessing to the children you help.
Kathy

August 10
A MyEndometrialCancerTeam Member

Irene:
Know you are not alone on your journey and that probably all of us had the same emotions you are going through at the stage you are at and at other stages.

As difficult as it is to do, try to stay in the moment and not allow the “what if’s” to take over your thoughts.

I used to be a big “what if” person especially since being diagnosed almost 3 years ago with Stage 3 high grade endometrial serous carcinoma - HER2 positive 3+, which is known to be really aggressive and has a high rate of recurrence and being told that the treatment plan was 6 chemo treatments (Carbo and Taxol) 3 weeks apart, brachytherapy-up through the vagina and 1 year of infusions of the targeted therapy Kanjinti (similar to Herceptin). Then when it was time to get the bradytherapy treatment the radiologist did a trial run (without the radiation) and discovered that I was not a candidate for the radiation because I have a deviated septum near the top of my vagina so the canister through which the radiation would not go straight up to the pelvic area where the pelvic washings during my hysterectomy showed there was cancer. The canister would point to a different area in my abdomen that could cause serious issues.

I was devastated knowing I wasn’t going to be able to got that very important treatment to killing and hopefully keeping the cancer from coming back.

I am a person of Christian and have. strong faith, remembered how Faithful God has been in my life, that we are told in Scripture that we will have trials but we won’t walk alone and what comes to mind is the Poem Footprints where as a man looked back on his and saw two sets of footprints in the sand but during the most difficult times … the man questioned Jesus as to why he left the man at those time and Jesus said to him “when you only saw one set of footprints was when I was carrying you”.

To me Faith is “not knowing what the future brings but knowing who holds my future”…. and that is a Faithful God who will one day take me to Heaven to spend eternity with him… in a new body free of pain, cancer, sadness etc)..
I will pray that each day your mind will be able think more of the many things you are grateful for and less of the “what ifs” that usually don’t happen.

Blessings,
Kathy

PS being tested and seeing your oncologist seems to be the norm but should you feel something has changed with your health reach out sooner than later.

A pet scan was not going to be part of my every 3 month schedule but my oncologist did agree to that because I told her that none of the tests in the 2 years prior to my hysterectomy when I was spotting blood showed anything and a pet scan would have so she agreed to do the pet scan because of the type of cancer I have, the stags and that I wa HER2 positive 3.

August 9
A MyEndometrialCancerTeam Member

Congratulations on finishing treatment! In many ways, (other than losing my hair) the time you are going through now was hardest for me. When going through the treatment I just focused on getting through each step of the plan. But afterwards, I experienced fatigue that was unbelievable as well as dealing with the emotional aspect of this advanced cancer. Thank God that got better after a month or two but it was rough! I hope for you that you bounce back quickly so you can enjoy a wonderful , long life!

August 9

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A MyEndometrialCancerTeam Member asked a question 💭