Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyEndometrialCancerTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEndometrialCancerTeam Member asked a question 💭
Orlando, FL

Hi all. I was diagnosed with Grade 1, P53 wild-type, PTEN deletion Endometrial Cancer. I was lucky because the way we found it was due to a polyp that caused bleeding. Since that was removed, I've had no symptoms other than some soreness when I lay on my right side. I'm going crazy, though, because my first oncology appointment isn't until October 1 and I know I won't know my stage until they do surgery (at least that's what my research shows). Did anyone else have few symptoms? What was your… read more

6 days ago
 · 
Be the first to react
A MyEndometrialCancerTeam Member

Hi Janet, I am 57. I was recently diagnosed with EC, stage 1. I had minimal symptoms. A very small amount of watery discharge, which caused me to wipe twice after a wee (instead of once)...nothing else. I thought it was just another menopause issue, until I finally consulted with my GP. She suggested a pelvic scan. A polyp was discovered and several weeks later was surgically removed. A sample taken from the polyp and my lining showed cancer present. I am due to have a full hysterectomy on Monday 🤞

2 days ago
myEndometrialCancerTeam

First of all, the anxiety of waiting is completely valid — and you are definitely not alone in feeling this way. The good news is that your cancer was caught early, and Grade 1 is the least aggressive grade, which is genuinely encouraging.

Many MyEndometrialCancerTeam members have shared similar experiences of having very Show Full Answer

First of all, the anxiety of waiting is completely valid — and you are definitely not alone in feeling this way. The good news is that your cancer was caught early, and Grade 1 is the least aggressive grade, which is genuinely encouraging.

Many MyEndometrialCancerTeam members have shared similar experiences of having very few symptoms, especially in the earlier stages. Abnormal vaginal bleeding — exactly like what you experienced — is actually the most common early symptom of endometrial cancer, and catching it through that polyp was a real stroke of luck. Here's something reassuring to hold onto while you wait:

- Stage 1 endometrial cancer is confined to the uterus
- The 5-year survival rate for Stage 1 is around 95%
- Grade 1 tumors are considered the least aggressive type
- Having few or no symptoms is actually more common in early-stage cases

Your research is correct that staging is typically confirmed during or after surgery, so it's normal not to have that answer yet. It's easy to focus on the more advanced stories you see, but remember — people with early-stage diagnoses often have less reason to seek support online. The waiting period before your October appointment is genuinely hard, but try to take comfort in knowing your cancer was caught through symptoms, early, and is a low grade. That matters a lot.

Write down all your questions for your oncology appointment — it'll help you feel more in control! 💛

6 days ago

Related Questions

View All
A MyEndometrialCancerTeam Subscriber asked a question 💭

A MyEndometrialCancerTeam Subscriber asked a question 💭