Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyEndometrialCancerTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I’ve had a terrible rash and painful neuropathy with the first two treatments. She say taxol is the most likely culprit and it’s the least important.

September 10, 2025
 · 
Reactions
A MyEndometrialCancerTeam Member

No keytruda beyond the initial 6 infusions. I had no molecular markers for which Keytruda is known to work on and my gut was telling me not to do it. I can always go for it at a later date if new research shows better results. My oncologist did mention that sometimes chemo drugs given together have better results than when used alone.

September 18, 2025
A MyEndometrialCancerTeam Member

Thanks. Not too much info!
You’re not on Keytruda now?

September 17, 2025
A MyEndometrialCancerTeam Member

Doing ok post treatment, energy level is low but not as bad as during chemo. I do not sleep well, that happens after menopause, so can't blame that on chemo. Seems I feel the need to nap every day around 10am. I try to meditate everyday and find myself nodding off! I am hoping I get over that issue at some point, but it is pretty minor. My muscles feel stiff so I am signing up for a stretch yoga class, you hold your position for 3-5minutes!
The psoriasis rash on my head has healed, I will test it this week by eating potatoes, peppers, and tomatoes (nightshades) and see if it comes back. The rash showed up after treatment was over but I am in the 3 month wash out phase still so attribute it to Taxol or Keytruda. After the 2nd treatment I got a rash every time and almost exactly on the same day!
My appetite has returned but I do find that some foods I ate during treatment like pecans no longer appeal to me. Still have chemo brain, here is an example: Went for my annual Medicare wellness check with my PCP. She made me an appointment for next year's visit and also a check appointment after I get the bloodwork done that she ordered. I can remember her making the appointment for next year's annual exam but not the bloodwork follow-up appt.! I came home and wrote it on the calendar so I must have been given an appointment card which I do not remember at all! Need to do some activities that will stimulate new brain cell growth for sure:)
Emotionally I am doing well, it is so great to be beyond all of the side effects. I see a physical therapist next week who specializes in post chemo care so hope to get some exercises for my feet and poor balance (I sway forward and back when standing in place).
At the end of the month I hope to get some guidance on supplements from an integrative Doctor.
Meanwhile I walk for an hour every morning and look for the joy. Cat videos are great for bringing a smile to my face. Thinking about voluteering at a local animal shelter but not sure if I am up to the 3 1/2 hr. commitment yet. Do not want to push myself too hard, my WBC is still off. Probably too much info for you, but here it is!!

September 17, 2025
A MyEndometrialCancerTeam Member

How are you doing post treatment, other than neuropathy?

September 16, 2025
A MyEndometrialCancerTeam Member

It is good your Oncologist is being proactive. I had the same regime as you and am also experiencing Neuropathy, it only gets worse with each infusion. So if you have numbness after only two treatments that is a concern. It took 5 treatments for me to get numbness in my feet.
Post treatment I am dealing with the numbness daily and hoping it lessens a bit. I guess a treatment is no good if it is the source of severe symptoms that leave you with a poor quality of life.
I had an itch response after the first infusion and it slowly increased to the point of needing to ice my hands and feet all day. It was not a survivable condition, the itch was so intense I felt like my head was going to blow off. Fortunately, gabapentin took away the itch and I am hoping it is not a permanent condition. My oncologist had never seen this side effect so had no comments on what is causing the itch. I guess what I am saying is it is better to stop a drug before it becomes too disabling. Hope carboplatin and keytruda get you the response you need:)

September 16, 2025

Related Questions

View All