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A MyEndometrialCancerTeam Member asked a question 💭
Derbyshire,United Kingdom

Is there any research that I can donate to that specifically researches treatment of carsinosarcoma of the uterus? I’ve been diagnosed,having hysterectomy next Saturday but as it’s a rare cancer I can’t find a website that deals specifically with this type of cancer and can’t find any details pertaining to helping to fund research

May 23
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myEndometrialCancerTeam

First, best wishes for your hysterectomy next Saturday — it's completely understandable to want to channel your energy into supporting research for something so rare and personal.

Uterine carcinosarcoma is indeed a rare and aggressive form of endometrial cancer, which makes finding dedicated resources tricky. However Show Full Answer

First, best wishes for your hysterectomy next Saturday — it's completely understandable to want to channel your energy into supporting research for something so rare and personal.

Uterine carcinosarcoma is indeed a rare and aggressive form of endometrial cancer, which makes finding dedicated resources tricky. However, there are some well-known avenues worth exploring for donating to relevant research:

- Foundation for Women's Cancer (FWC) — funds research across gynecologic cancers including uterine carcinosarcoma. Visit foundationforwomenscancer.org
- National Cancer Institute (NCI) — supports clinical trials and research into uterine carcinosarcoma. You can explore trials at clinicaltrials.gov
- gynecologic cancer research centers at major institutions like MD Anderson or Memorial Sloan Kettering often have specific donation funds for rare uterine cancers

Participating in or donating toward clinical trials is another powerful way to support research directly. Researchers rely on both participants and funding to advance treatments for rare cancers like this.

It's also worth asking your oncology team if their institution has a dedicated research fund — many hospitals accept targeted donations toward specific cancer research programs.

Your desire to give back to the community is truly inspiring! 💛

May 23
A MyEndometrialCancerTeam Member

For me, I'd gone into the ER for bleeding and was hospitalized. They moved quickly because my hemoglobin was very low and I'd required 5 transfusions already. They did a dnc and put in an IUD, then sent samples to be tested. They didn't wait for results, had the oncology appointment booked for the next week. She did the radical hysterectomy 2 weeks later. So that entire stage was about 3 weeks.

June 6
A MyEndometrialCancerTeam Member

Thanks,I will look into these

May 23

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