Comments about Carboplatin shortage:

About a few weeks before I was to start my Carbo / Taxol infusions in October 2023 I read about and verified that there was a shortage because 80% of Carbo was manufactured in India for a cash cow US Pharmaceutical Company and due to how little the Pharmaceutical company was paying the manufacturer the manufacturer could no longer afford to keep their doors open. Definitely an example of corporate greed at the expense of women with cancer. (and other people with different types of cancer where Carbo is the go to drug.

I also had read the a women who was a soldier had a reoccurrence of her endometrial cancer and Carbo was the best (and really only)) option to put her cancer in remission but the decision had been made (I think nationwide) that only patients who had been diagnosed with endometrial cancer for the first time would be eligible to get Carbo. Women whose cancer was reoccurring would not be eligible for Carbo until the supply levels allowed for it.

I did find out from an oncologist that the shortage information and the priority for who gets it would not be a decision by individual oncologists . I think she said it was made at a much higher level oncology/medical organization (but I can’t remember the name. I jest remember being thankful each individual oncologist didn’t have to make thee possible life and death decision for their patients.

More needs to be done in this country to educate women about endometrial cancers (just like what is done for breast cancer)) such as what is it, what are the signs to be aware of, etc. starting with primary care physicians, health classes in schools, gynecologists, health fairs, etc. prior to being diagnosed with endometrial serous carcinoma I had no idea I had it, and no idea how aggressive and reoccurring this type of endometrial cancer is..